Release …sort of

Well, back in the hospital again for platelets and kidney function test today.  The loooonnnnnng day starting at 8am and ending at 5pm.  Fortunately Holling-the-hospital-licker didn’t stay here.  Turns out right next to us…playing in the same room, with the same toys….is a little one with Norwalk.  Gah.  The poor staff here told us late this afternoon and apologized for not keeping Ruby in a room.  She still has a seriously  compromised immune system so she can’t be around these lovely viruses.  Then another little one had an mysterious rash and a cough……right behind us.  The doc came in and had a discussion with the mom about the possibility of chicken pox and live vaccine he received a week or two ago (you aren’t supposed to be in the ward with a live vaccine but that didn’t seem to matter) and then I think of the measles outbreak just down the road.  The interesting thing was when the doctor said, “well he’s been vaccinated but once you have chemo it removes that immunity.” http://www.uptodate.com/contents/immunizations-in-patients-with-cancer

I masked Ruby up the moment we got in and had another parent ask why and I just said protective isolation and she snorted and said, “well, they wouldn’t let a kid in here who was sick.”.  I’m kind of glad I’m a paranoid freak.

Our nurse today is super lovely.  Turns out her girl (birthday a few days off Ruby’s) is so similar to Ruby.  Prefers a box of recycling to a fancy prepped box for crafting.  Loves science shows, MLP and LPS.  Forget the colouring books, these girls just like a big pad of paper and some good quality crayons and pencil crayons.  I forgot to ask her if her kid had the same obsession with pipecleaners.  I swear-to-celestia (come on, if you know what MLP is – you’ll get the reference) we have to restock once a month with Ruby.  I’ll get her fairies lined up from our 28 day stint and take a pic.  You’ll love it.   I also saw a book someone self published and dropped off here. It was SO sweet!  It was a story about love and losing your hair and how to be a princess no matter what.  I just love that some mom took it upon herself and just made a book!  Gives me ideas I tell ya.  I’ve got enough illustrations by now.  Ivy and Marigold.   Our fairy friends.  Maybe I’ll just write one this week, take a pic of the drawing and see if you dig it.   Righteo, carry on.  Now that we are out of hospital I might not post as often so don’t worry, nothing terrible is going down, just taking a wee break from whinging.

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