So now I have been told that despite her CMV negative on admission status, she’s been given CMV untested products 4 times. Then I was told that the Dr. yesterday was wrong and it’s not an antibody transfer risk, it’s an actual viral infection risk. Which in Ruby’s case would be life threatening right now.
Then I was told the policy is across Canada that neutropenic patients (those who are immune compromised to the n’th degree) don’t receive CMV negative products unless they are awaiting a transplant from another person. Then I read three province policies from 2014 that are actually completely in opposition to this “new” policy here in BC. Which negates the Canada wide theory, also it questions the validity of that decision. Then I read a bunch of articles on how CMV is a really big mortality risk in patients such as Ruby and also for patients receiving their own stem cells. Then I was told that CMV negative products are held for transplant patients only (greater good evaluation) which I think is great and then I was told she was given CMV negative just because her’s need to be washed and with the luck of the draw they gave her older platelets that just happened to be CMV negative because no one has been needing the CMV negative platelets. (Greater good not required as often as thought?).
I requested a retest of Ruby as of now to gain her current CMV status.
Then I respectfully requested CMV negative products until that is established.
I had to correct the delivery of the information this morning to a more respectful tone towards me. And then I was asked why Ruby was receiving a certain volume of fluids in her line. Which I replied to in a very respectful way. I am not the one who sets the volume of fluids nor am I the one with the ability to assess the volume requirement. That would be a decision made by the doctor, therefore, if you feel she does not require that amount of fluid, perhaps you should reduce that? Yes. Don’t question, don’t ask, don’t educate yourself but you as a parent are 100% responsible for accepting and signing off on any drugs/treatments/blood products given…..without education on risks or current policies, without information and without questioning. What a fantastic situation.
Please forgive my current disillusionment. Please forgive my current disbelief. I just think that blind acceptance is not applicable nor is it proving to be safe.